Treatment boost for Batten disease Newcastle toddler

13 March 2018 – BBC News

A two-year-old girl with Batten disease is now being treated at the same London hospital as her sister after previously being forced to travel to Germany for care.

Nicole and Jessica Rich both have Batten disease, this is a fatal disease of the nervous system, and causes seizures, visual impairment and a loss of mobility.

Jessica was part of a trial in Hamburg while Nicole, five, was treated at Great Ormond Street Hospital.

However, as of 10.03.2018, Jessica joined her older sister for fortnightly treatment in London as part of a scheme funded by an American pharmaceutical company.

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